Showing posts with label dyslexic. Show all posts
Showing posts with label dyslexic. Show all posts

Tuesday, August 9, 2011

100 Books for fun

Having a gifted dyslexic child can be challenging. He has compensated for his dyslexia in such a way that makes intensive phonics work seem unnecessary to him (until we get to phonics rule 50 or so and it becomes "new"). As a result, I needed something to encourage him to work with me and read, read, and read. Of course, he thinks he can already read. When tested a few months ago he was reading at the First grade, six month level. Not bad, but definitely well below where he should have been (he was in K at the time). I wanted to do something to encourage him to stick with me and for him to see light at the end of the tunnel as well as progress.
Looking through an Oriental Trading catalog I saw many resources celebrating " First 100 Days of School". Light bulb went off - lets read 100 books! With dyslexia, it is important to get kids to read, read, and read. It is also important that they read out loud and become comfortable with reading (reading aloud also lets the parent hear where they are struggling). So, we are doing the "First 100 Books". I got a an amazing cardboard train with 100 numbered large and colorful train cars. We will write the name of each book he reads aloud on a train car. We will start with simple Bob Books and work our way up to more complex chapter books.
I told him he got to chose a reward for reading 100 books. In typical, gifted child fashion, his chosen reward (and absolutely nothing was off the table) was to build a robot at night! His robot building has to be during the day, but he would like to be able to stay of late to build a robot as a reward. Not your typical reward, but it is motivating him to get started on his journey! If we are successful I will continue on to the next hundred. The moral of the story is to find a passion for your child as a way of motivating them to do the hard things. Reading a book out loud is a hard thing for a dyslexic child - if robots is what is needed to encourage my little guy to read 100 of them - I am all for it!

Sunday, July 17, 2011

Why diagnose giftedness?

One question I get a lot from other parents is why it is important to identify a child as gifted. This is a very valid question, what makes being labeled "gifted" so necessary? For many people, being labeled "gifted" is the equivalent if being labeled "pretty" - while its neat and cool - it really doesn't affect your life and serves only to make the "non-gifted" feel bad.
Giftedness is more than just being "smarter" than your classmates, in fact - the most gifted children would probably not even be recognized as "smart" in a traditional classroom. This is one of the most important reasons for identifying giftedness - misdiagnosis. Out of its proper context, a gifted child can present very closely to a child with ADD/ADHD and even Autism Spectrum. The book "The Mislabeled child" by Brock and Fernette Eide covers this very well. The intensive focus, extreme sensitivity, and even turning into themselves and not interacting with peers can get a gifted child diagnosed with ADD or placed on the Spectrum. Their emotional responses can be so intense its scary and their focus on a subject or topic and keep them engrossed for hours, even at a very early age. In our society, "weird" behavior (what really turns out to be non-age appropriate behavior) is seen as a problem to be "solved", not as a possible ability to be explored. Knowing if your child is indeed gifted will help you to put any future diagnosis (or mis-diagnosis) in perspective.
Another very important reason for identifying if your child is gifted is that the more gifted a child, the more they are likely to be able to mask a true learning disability. Without our great relationship with our children's psychologist (who specializes in working with gifted children), we never would have gotten a clear diagnosis for our eldest with dyslexia (and subsequently vision issues and auditory processing). He looked "fine" based on the standards of age normed children. When we approached his K teacher and the entire board at his private school about our concerns with his reading, they looked at us like we had three heads (one big reason we are homeschooling now). How could this child have a reading disability, he was the best reader in the class! This isn't uncommon for gifted children and possibly the norm for profoundly gifted children - they are so good on so many levels they can compensate for their disabilities - for a time anyway. It isn't until their compensation becomes inadequate that they are identified - oven times when it is much harder to remediate their issues. A gifted child with disabilities may very well be in the middle if not the top of traditional class achievement. Without a gifted diagnosis they may never be identified as needing intervention to allow them to work at their own personal best. And, as a side note - if they are identified as having a disability, they still may not qualify for state sponsored remediation (yet, another reason we are homeschooling). And I am by no means stating that homeschooling is the answer for every family with a gifted child, just that our children's giftedness and our state system not set up to handle such children helped lead us to this decision. I just think it necessary to inform parents of gifted children that if they do have a twice exception child - they may be forced to pay out of pocket for the remediation of any disabilities. It may not be fair, but it is the reality you may face.
The final reason it is important to identify if your child is gifted is so that you can find a community in which to network. It is estimated that roughly 10% of the population is gifted, around 3 - 5% of those highly gifted, and less than 2% of those profoundly gifted. Gifted children are not all the same, but many share similar characteristics. Being able to talk with others that have a family like your own is important. Having someone else to discuss the "sock issue" (many gifted children have sensibilities to clothing - they cannot stand tags on clothing or the seams around socks) can be liberating. Being able to discuss the conversations your child is having with you that would normally get you angry stares or looks of disbelieve is important. Having someone who understands you aren't "pushing" your child toward academics - you are simply holding on for dear life as they blast full speed head is liberating. And yes, having a place to vent and brag is important as well. Your gifted child is special, your gifted family unique (because gifted children aren't randomly born - there is giftedness inside of you as well) - it is important to find your "tribe", your community in which you feel safe and free to be you. I hope this blog becomes such a place, but even if you don't connect here - please connect somewhere. There are lots of online sites, listservs, and blogs. There are also real life communities (mostly in large metropolitan) areas where you can connect with other gifted families. I would also recommend at least one visit to a psychologist that specializes in working with gifted children. You may need a professional to help you advocate for your child in their school setting, or help you get a more proper diagnosis for your child when a label doesn't seem to fit quite right, or just someone to let you know you aren't crazy - your five year old really is ready for physics.

Wednesday, June 15, 2011

To one's full potential

One of the hardest concepts for a parent of a gifted child to contend with is "full potential". People love to talk about allowing children to work to "their full potential" until they encounter a gifted child - especially a profoundly gifted child. We found this out with my eldest. He had been grade skipped into Kindergarten, was reading a a First grade level, but something just wasn't "right". So, we took him to a psychologist who specializes in working with gifted children (and who is amazing by the way!!) and our suspicion was confirm - he was dyslexic. As we searched deeper into his issue with reading we also found he had severe vision issues.
Now, fixing the "reading problems" of a child reading two grade levels above where he should be age wise becomes a challenge. Not to us, but to the traditional world of education, which we found we just couldn't bear to navigate. "Problem, what problem? He is the best reader in the class!" Okay. That might be true, but that wasn't his full potential and that wasn't okay with us and it shouldn't be okay with anyone.
I found people are very comfortable encouraging a child to work to their potential when you are talking about a child below the norm. Of course we want every child to be all they can be! Really? I had hoped this would be the case. Unfortunately, I began to feel the push to isolate and conceal. Conceal the fact that our three year old twins would be doing First grade math in the fall. When a gifted child begins to work to their full potential, it can become very uncomfortable for those around the child. It seems unnatural - does this little kid really like math that much? Yes.
I believe one of the hardest things people must fight against is comparison. My children working at advanced levels in academic subjects in no slight against any other child on the planet. My husband and I don't think our children better than any other children, we don't look down on anyone and don't consider other children "behind". Honestly, we are so busy trying to hang on for dear life as our children learn and grow we don't have time to think, let alone think ourselves "lucky" or "above". How can I think of myself as above, I need to wear a life preserver to keep for sinking under the weight of the challenge and responsibility of educating these three children that refuse to fit into a box called "age appropriate".
That is really what this blog is about. Wanting to finally give a voice to all those parents like us, hanging on for the ride. To show the people there is no formula for a gifted child, if they learn to read at 3 or 5 or 7, it really isn't the work of brilliant parents - these kids are just made in a unique way. Having at least one "twice exceptional" child (a gifted child with a learning disability) is an even bigger challenge. Have you ever seen someone park in a handicapped parking space - only to get out of the car looking perfectly healthy? This is the plight of the twice exceptional child - no one can "see" the disability - so they believe you are a fake and a phony trying to get some unfair advantage. So, here we are - dealing with the jeers and the sneers as we struggle with challenges people can't see with the naked eye. Its okay though - my child is worth the the struggle of giving him the opportunity to work to his "full potential". I'll admit, its amazing to watch.

Monday, May 30, 2011

Intensive Phonics Part 2

I'll be adding some pictures a bit later, but wanted to get the plan up now (while I am organizing things). I always cover information in at least four ways with the kids. This covers there different learning styles, and allows me to reinforce information in fun and new ways.

Spines that influence the way I set up our curriculum
1. Uncovering the Logic of English by Denise Eide
2. Find the vawol: Read the Rime Learn to Read by Miriam Cherkes-Julkowski
3. Reading Horizons Intensive Phonics at Home

These two books are written for the parent/teacher to help you have a more foundational understanding of the reading process. Reading these two books before designing our curriculum was key in helping me to set things up.

The main four ways the kids learn reading/spelling through intensive phonics is 1) parent-led instruction, 2) computer-based instruction, 3) reinforcing DVD's/videos, 4) arts and crafts/games. Since I separate reading and writing, our main source of interaction is through communicating - I can tell if the children understand by their responses and interactions with me during our lessons. I also use magnetic boards. I have several sizes of magnetic boards - from lap boards to wall boards. I have tons of magnetic letters and hundreds of words.

Parent-led instruction:
Using the principles from my two spine books, I set about with certain activities we will do on a weekly basis. We will cover a minimum of 2 phonic rules a week. Weekly activity include:
1. Parent-led intensive phonics at home - one or more sections each week
2. Webber Phonological Awareness Photo Cards - these are flash card that deal with a unique set of phonological awareness (such as syllable deletion). These are really important for my dyslexic child
3. AlphaTales books - these are 26 books that focus on the different letters of the alphabet. They are neat stories that utilize a number of interesting words that start with the various letters
4. Starfall books - these are books to coincide with the various stories on the Starfall website.
5. Bob Books - we have the entire set and I like these because the children can use their phonic skills quite quickly to read the books. Mind you, the books are a bit boring, but they work for us.
6. Dr. Seuss books - Dr. Seuss books are AMAZING at reinforcing phonics. Especially with the made up words that coincide with phonetic skills. Just a great tool to use. I LOVE Dr. Seuss books!

 Computer-Based Instruction:
1. CD-ROM based intensive phonics at home (my eldest, age 5, enjoys this program a lot in this format)
2. Help Me 2 Learn Super Star Phonics CD-ROMS. We have the entire set, so they can do computer based activities based on what we are learning
3. Hear Builder Phonological Awareness CD-ROM - great for ear training, again necessary remediation for my dyslexic child
4. Starfall - a great free website that teaches phonics skills

 Reinforcing DVDs
1. Rock-N-Learn Phonics DVD - we may do this depending on our mood and if we need some reinforcement
2. Tad Letter Factory and Tad Word Factory DVDs - these videos are fun ways to reinforce things we are learning
3. Classic Electric Company DVDs - fun way to reinforce some of our learning
4. Word World - a great program for letter substitution

Arts and Crafts/Games
1. Wood and Card board letter decoration. We are starting with the alphabet and phonics associated with the different letters, then moving on to blends. Each new letter we do gets decorated as we discuss it's phonic sound(s), the role it plays in words (consonant or verb), what is special about it (like Q always needs a U after it or Y is sometime a noun and a verb).
2. Games on the magnetic board - like Hangman, Scrabble, etc.
3. Felts - I have quite a few nursery rhyme felt scenes, so if we are doing sounds that are common in a nursery rhyme I have felts for, we will act those out. I also have felt letters so they can write a word or sentence that has to do with the felt scene showing.
4. Rory's Story Cubes - these are nine dice with different pictures on each side of the dice. You pick how many dice you want the child to throw (the more dice you use, the harder the story to develop). We will start with one die and kids will have to try to come up with a story utilizing at least one word made up of the phonic rules we have learned.
5. Story development. Just to have some fun, we will sometimes take an object or even a painting and each child will make up a story around it. I love this as a way for them to utilize their language skills and expand their vocabulary.
6. Letter bead bracelets. There are times when they may want to learn to spell a particular word. Especially if it is a new word we learned during story telling or in science or from reading a new book. Instead of just telling them how to spell the word, we will spell it out with beads, then make a bracelet with the word spelled out. They can wear the bracelet around as they learn to spell and sound out the word. If we haven't gotten to the correct phonetic sounds yet, I will just tell them the rule and let them know we will learn about it more later. They will eventually have enough bracelets where they can wear messages on their arms. Also have necklace strings so they can create long words or even sentences to wear around their necks.
7. Painting and coloring based on different words we focused on while learning our phonic rules.

These are some of the things we do weekly. I want to keep things interesting and focus on the outcome of learning. Since my kids are at such different levels - intellectually working quite far above their ages, but also dealing with dyslexia and limits in fine motor skills based on age - we have to be creative. Hopefully things work, but if we need to try something different - we will do that too!


We will discuss Handwriting in my next posting

Thursday, May 26, 2011

The Gifted Dyslexic

Being gifted and dyslexic myself, and having at least one gifted and dyslexic child (my other 2 are a little too young to make a good determination for dyslexia, but they are definitely gifted) I can't say I am an expert - but I am definitely well versed on this topic.
These are probably two of the most over quoted and misunderstood dualities a person can have. For one thing, being dyslexic can mask giftedness; however, giftedness can often mask dyslexia. Talk about being a "man without a country"! Thankfully with my eldest (5) we were able to have both diagnosis confirmed early in his life. When it comes to giftedness, my eldest is pretty close to the top of that category - being well in the upper 99th percentile of intelligence for his age. This makes him not only "bright", but he also has many of the other and lesser known characteristics of giftedness - emotional intensity, good and advanced sense of humor, excellent memory, perfectionism, heightened sensitivity, vivid imagination, etc. We knew he was gifted at a very young age, and the entire package of giftedness can be quite a challenge. There are all these giant emotions, abilities, interests, ideas floating around in this tiny package. The mind working so much faster than what the body can handle. Singing the alphabet song before the age of one might be cute to passerby's on the street - but being gifted isn't just cute intellectual feats. Being gifted also means being different. Around 10% of people would be considered "gifted", around 3% "highly gifted", and less than 1% "profoundly gifted". All three of my children fall between highly and profoundly gifted. This can be a lonely place, when no other child you meet is quite like you.
Then we add on this dyslexia. Dyslexia is often referred to as a "reading disorder", but that isn't really the entire extent of it. This is especially true for a gifted dyslexic. My eldest actually reads above grade level. However, he struggles with phonetic awareness, being able to see the words clearly, and even being able to mentally retrieve the words he is reading - even though he knows them. Reading for a gifted dyslexic is kind of like being conscience that you have amnesia - you know you can't remember or retrieve something that you know you know! It is frustrating and lonely. This is a child that can build a working robot from scrap parts at five years old, yet he will look at the word "and" in a book as if is written in Mandarin. What makes dyslexia even more confusing with gifted children is they are great a picking up context - so the longer a passage or even a book the more they understand. So, while reading Bob Books might be slow going, having a math book read to him can be quite enjoyable and enlightening. And again, even with his struggles he reads above grade level.
My eldest also has vision issues that many don't understand. So, his eyesight is 20/20 without glasses, but the way his eyes work with his brain causes problems - specifically with tracking and teaming. Basically, his eyes don't always work together to focus on an image and will fight to show him their own isolated image. Imagine trying to read with the words dancing around on the page and the pictures jumping from eye to eye. Yet, though it all, he still shines.
He is just now at an age where we can work on these issues. His homeschool First grade curriculum is quite unique - basic phonics to improve his phonological awareness along with physics. Yes, being a gifted dyslexic is a unique place in the world. My goal is to make it not so lonely for him, help him find his tribe, and help him to realize that unique isn't a curse - but a blessing. We will correct those downsides to dyslexia and vision issues with 12 months of intensive vision therapy. However, there are some upsides of dyslexia we don't want to harm - like the creativity, the ability to see what others do not, the ability to find your own way in problem solving since what you are seeing is uniquely yours and yours alone. I now see why the call gifted children with learning disabilities - twice exceptional. They really are often doubly gifted. Its their unique way of overcoming challenges that make children like my eldest so amazing to watch.